Friday, October 3, 2008

Rachel's Story - Intro

Hi, my name is Rachel.  I’m 25 years old.  I have a two-year old Yorkie whom I adore.  I am a vegetarian and Indian & Sushi are among my favourite foods.  In my spare time I love practicing yoga and watching movies.  I have a degree from the University of Ottawa in Theatre (I LOVE acting and directing) and in Communications.  I’m a daughter, a sister, a girlfriend, a student, an employee, a friend.  I am one of the 1 in 5 people affected by mental illness in our community.  I have Bipolar Disorder.

 

Clearly, the decision to be open with others about any illness is very personal and, unfortunately, there is lots of stigma attached to mental illness in particular.  But I want to share my experience of this disease with you; both the experiences of my past, and the journey I’m on now.  I’m eager to share because for the first 23 years of my life, I hid the symptoms and feelings I was so ashamed of.  No one in my world talked about mental illness.  I didn’t know of anyone who saw a psychiatrist or had a diagnosed psychiatric disorder.  I had no idea that my out-of-control moods and dark thoughts were in fact due to a chemical imbalance.  I felt so alone.  So I spent every day putting all of my energy into showing the world that I was ok – just like everybody else (it’s no wonder that when it came time to choosing what I wanted to pursue at University, I wanted to learn acting!).  As you may know from personal experience, this is an exhausting way to live.  In class at school, I tried very hard to focus so as not to break down in tears.  I just wanted to lie curled up on the floor and disappear forever.  I still feel this way much of the time.  In fact, this past week or so has been filled with feelings like this.  I am relieved, though, to have a reason (a diagnosis) and people to talk with about it (whether that be a friend, a family member or my doctor).  It has been freeing to not feel that I have to hide this HUGE thing I am going through.  The openness has created somewhat of a support system.  People in my life weren’t able to help me when they didn’t know what, if anything, was wrong.  That being said, my natural instinct when I’m sick is still to withdraw from the world and isolate myself, even from the people who are closest to me.  It continues to be a constant struggle right now, every day.  I realized this past week that I was falling back into my old pattern of faking feeling good.  It’s so hard when I know that everyone in my life wants so desperately for me to be well.  I hate disappointing them…but I think I hate the loneliness even more.  I know that I’ve never felt worse by speaking honestly about my mental illness.   That being said, I hope that voicing my experience here will help me manage my symptoms and, more than anything, I hope that someone with similar symptoms might feel a little less lonely by reading about my journey.

thanks for reading.   

see you next week,

Rachel

 

 

33 comments:

Anonymous said...

Hi Rachel welcome to the family! I'm 1 in 5 also, and I'm so glad you have shown so much courage and are sharing your story with others in order that we get the message out that we are not alone, there is HOPE! Please please do not feel ashamed in anyway as none of this is your fault, try your best to remember this. Together we will be able to reach out to others, and most importantly, reach out to each other to talk, share, so you do not suffer in silence as I once did!Please know that I am here to talk with you, listen and hopefully be your friend also! larry

Anonymous said...

Thanks for the nice welcome, Larry. And the words of encouragement; it`s truly been a struggle this week. I suspect we`ll get to meet on Monday morning...I look forward to it!

Anonymous said...

It will be an honor to meet you, and I look forward to meeting on monday, this is great news!Please know that I would welcome the opportunity to help out in anyway that I possibly can,and know and remember that YOU ARE NOT ALONE! OK. As I keep saying, writing etc. there is HOPE as you shall see, and I'm here to support you in anyway I possibly can. Talk soon larry

Anonymous said...

Just wanted to know how you're doing, if that's okay?You said you were struggling this week,and if you'd like to chat about anything please know I'd love the opportnity to talk, be a friend for you and listen so maybe it would help you in some small way. Let me know if you'd like to. we will definitely be meeting tomorrow morning, and we are all looking forward to seeing you,chatting,and welcoming you to the "family" at the RO. Larry

Anonymous said...

thanks Larry. i think it's a problem with meds....they (doctors) just can't seem to find the right mix...they've been trying for the past couple of years. suicidal thoughts and anger have stopped for the moment. i'm very anxious though...had a panic attack at work today but at least my employer is supportive (in fact they have allowed me to run a free "Yoga for Mental Health Series" for the public (last one is on Tuesday night) and this evening our staff put up a Mental Health Awareness window - we're a retail store). pretty amazing! mental health awareness has been a passion of mine for quite some time. when asked to write this blog, i first hesitated out of fear. but fear related to stigma makes me so frustrated that I finally agreed!

Anonymous said...

Ya been thru the meds thing too as it also took about ten years of trying, with no help, until the last couple of years when they finally hit it right after tweaking it for awhile.Suicidal thoughts, ya I also know as I constantly fought for years,again well over ten years, but please you also remember that YOU ARE NOT ALONE, and I will do anything to help you, and I mean that. We get to meet tomorrow, and I'm really scared, as I have said, as you are also saying that you're anxious too.If I may ask, are you going to be bringing anyone with you tomorrow to share and support you?

Anonymous said...

Hey there, if you'd like to chat for a bit, let me know as I'll keep checking to see if you leave me a time so I can be on to talk with ya, ok, otherwise I'll get to meet you bright and early in the morning,larry

Anonymous said...

hey Larry, i'm not bringing anyone tomorrow because that option was never presented to me. you? i'm planning to arrive at about 7:15 or so. i know you have to be there earlier.

Anonymous said...

Hey Rachel, I'll see you in the morning, take care, larry

Anonymous said...

Whoops, didn't know you were on. I'll make sure I look for you and we'll stick together, if this is ok with you though?? larry

Anonymous said...

I'll have my girls with me, as they're sort of involved with stuff also, but we'll make you part of us if you'd like?? I don't want you by yourself, ok. larry

Anonymous said...

yeah, sounds great!

Anonymous said...

Perfect, and am I allowed to ask how you're doin?? want to chat at all, about whatever,or would you rather meet first in the morning and go from there? larry

Anonymous said...

no, of course you can ask. i'm relatively ok. just last weekend i was making plans to end my life....so this is much better in comparison. with me it just seems to be this constant up and down (though more down than up really compared to some people with bipolar). and it's so exhausting!!!!!!!!! i'm worn out from dealing with this.

Anonymous said...

also, i've been having these terrifying things called mixed episodes where i'm depressed but have the agitated symptoms of mania. i feel out of control with anger. it's so strange because my nature is not to be angry at all.

Anonymous said...

I know we don't suffer from the same disease, but alot of our symptoms are the same, so I'm hoping that we can chat and you will allow me to say that I know what it feels like.I've written lots, BUT there's so much I haven't shared and maybe I can help you in someway please? As for the ending the life, yup I"ve had a million of those conversations with myself. Maybe you might find that with the friends you will make,and me, we can help you out. larry

Anonymous said...

Ya, and thats how I almost lost my family, with my rage, out of control anger, frustration, and not knowing what the heck was going on because I had changed, and wasn't who I use to be, nobody knew this person I had become. larry

Anonymous said...

When you get there in the morning, please make sure you come up to me so we can get you comfortable, and ya I'm trying to put on a brave face here cause as I said I'm terrified, but we can support each other is the way I figure it? and again thats only if its ok with you though, no pressure. larry

Anonymous said...

I'm hoping also that if we can talk, you will teach me so I am better able to be there for you to help if this is something you'd like? AsI said, we have alot in common I bet, just a few minor differences, which you can explain to me just as you just did. larry

Anonymous said...

As I have wrote, we're all different, BUT also the same as we're 1 in 5.Who better to be there for supporting each other than someone who really knows. larry

Anonymous said...

and the scariest thing to me is feeling that I don't recognize myself sometimes. fortunately my family is really understanding for the most part. i wasn't living with them when all this really hit a breaking point...that was probably a good thing. i have this constant urge to cut myself off from the world, the people i love because sometimes i feel like this monster that should just be hidden away. as i said in my blog, i'm always withdrawing and isolating myself. i lost some friends that way.

Anonymous said...

yes, i too hope we can have a chance to talk and form a friendship. it's probably going to be overwhelming but i feel better knowing you'll be there. i hope you know i am here for you, too.

Anonymous said...

Yes much better, and a friendship would be great cause I have lost my friends, I have one firefighter whom I talk to, sort of, but otherwise I stay away from others,everyone prett well, as I don't go out anywhere much. Work in progress as I say, and we'll see what the next day will bring.As for talking,I'll make time as I don't know anyone else, as in 1 in 5, and have also been lookig to reach out to someone also that can relate, you know what I mean I think.

Anonymous said...

I hate to say this, but I'll have to catch you in the morning, cause I took my meds a bit ago, and they make me sleep so I get through the nights, as without em, terror sets in.So, I'll look for you in the morning, and if I don't see you first, come and get me please. You take care tonight, see you in a.m. larry

Anonymous said...

yes, exactly. ok, i'm off to bed since we have to be up SO early! i can't wait to meet you. i'll look for you as soon as i get there!!

Anonymous said...

Great take care.

Anonymous said...

Hi Larry and Rachel,

Its been awhile since I've taken the time to catch up on what's happening at the blog and see that I've missed a lot. Over the past few months, I've had the opportunity to speak to a variety of health professionals and clients of the ROMHC and this has been a rewarding experience. I've never been ashamed of my mental illness but still find that each time I'm asked to address a group, I have to think about who I am speaking to and how will this affect me if the "wrong" person is there. Pretty selfish of me but hey, what can I say? The stigma of mental illness has been and will always be there unless I, and others like you two, continue to speak of our experiences to educate the ignorant and demonstrate that we are like everyone else. We have our challenges and we have our successes and living with my bi-polar and addictions has been a blessing in some way. I've had the great pleasure of meeting men and women, young and old, who like us, struggle with what it means to live with mental illness. I'm about to make another public address about my experiences and one of the things I will be asked is what inspires me to speak out. Its you Rachel, and you Larry and all the others who speak out on behalf for those who are yet able to. Since I've gone "public" I discovered hundreds and thousands of people who have been advocating for us and I see my role as continuing their work and passing it along to others. Thank you both for inspiring me to take risks that my illness tells me to run away from. Thank you for proving that with the proper care, that any of us can recover from the ills of our disorders and become productive.

Claude

Lina said...

I have bipolar and was a "hide and pretend your okay" type for awhile too. That DID make me feel a little less lonely.

so thanks, Lina

survivorgurl said...

Please don't feel alone, for I too have a Mental Illness, someone who suffered many years, someone who too is just only twenty-five years old. I know the feeling of being alone, I felt it. I know the feeling to withdraw from everyone who loves you, because no matter what they do not understand. I understand completely, I wen't through everything you wen't through, but to now be healthy, to me now off medication for a successful six months, it's the best feeling you could ever imagine. I know it's possible, I never thought it would be, but what ever you do you have to keep your family in the loop, because no matter what they will love you, whether they understand your illness or not, because they love you, they will always love you through your illness regardless. You take care and good luck because please don't think that you will never get healthy again because i'm the perfect example that anything and everything is possible. Take care and good luck.

Heather said...

Hi Rachel. Just saw your video and speech. You are incredibly strong and brave. People with mental health issues need a voice, and I myself find it hard to speak cause I don't always feel consistent. But despite your struggles, you were able to stand up and speak beautifully. Even if you don't always feel like it, you are a real hero. Keep fighting.

Pete said...

Rachel:
First let me say how brave you are to open yourself and try and help others.
I am pleased also that you find the medications to be helpful.
However, let me say to you that I would be very careful with those medications and particularly with ECT.
I have very little faith in the mental health industry. I was a Duplessis child who was subjected to huge doses of anti-psychotic drugs (eg: Largactil 300 mgs X3 daily) and many others while still an adolecent. I was also subjected to up to multiple ECT treatments in rapid succession - also as a child.
This was by several doctors who were supposedly the cream of the crop - Drs. Scully, Roper and Cameron.
The only thing I suffer from 'now' is PTSD from their minstrations. Otherwise I am and have always been a perfectly normal person with no depression, bi-polar or schizophrenic problems.
However, at the time I was diagnosed with childhood schizopheria (there is no such thing) and hospitalized several times for periods of over 18 months.
My caution to you is to be VERY careful how you portray the mental health 'professionals' to others who may be vunerable.
Advise them to be VERY careful whom they choose and to be quick to say no to any treatment which makes them uncomfortable or uneasy. Never give in to the entreaties of "you want to get better don't you?"
Down that road lies great danger and the potential for serious abuse.
I find it highly disturbing to hear you have been given ECT - a so-called treatment that was discredited close to two decades ago as far too dangerous and of very limited use. The memory losses and long-term damage are far too common. Anyone who suggests otherwise is not being completely honest with you. Read the studies.
I wish you the very best in your battle and hope you find the peace and contentment you seek.
Regards, Pete

Anonymous said...

Hi Rachel,

Thank you for being so forward. I would like to know more about your situation. Unfortunately, I can not say the same for myself. I know something is amiss but don't know what and I don't know who can help me. I feel very alone.

Thanks,
D

Grace Joubarne said...

Bipolar like all mental unwellness can be overcome. However it is vitally important to all sufferers that they read Medication Madness by Dr. Peter Breggin before they ever get started on psychiatric drugs and before they ever start to believe there is only one 'treatment' available. Dr. Breggin is the leading world expert on psychiatric drug and electroshock treatment, a psychiatrist himself and he says NEVER accept drug and electroshock treatment. In fact, the drugs have been proven to cause depression, agitation, panic, paranoia, suicidal and homicidal behavior...all of which are often blamed by doctors on the original issue. In fact, doctors do not tell patients that a direct effect of these meds is relapsing depression and psychotic episodes, even when completely weaned off them. As well, they never tell you that they are highly addictive and once on, it's a nightmare to wean off.

Empathic therapies have a superior track record and no one ends up with tremors, tics, heart, kidney and liver problems or a label for life on a cocktail of unproven drugs. Many studies and class action lawsuits regarding these treatments since 1970 have proven that psychiatric treatment of PTSD, Depression, Bipolar and Anxiety and all other mental discorders worsens the situation due to the brain-damaging effects of the drugs and electroshock.

Many people all over North America have resolved their issues with a competent hypnotherapist who can get to the root cause of the issue, instead of suppressing the symptoms. See the Carole Baker testimonial at http://www.graceplacewellness dot com/testimonials.htm for some insight into how drugs and diagnoses can be hell, unhelpful, incorrect and regretable...and how she saved herself by seeking an alternative...hypnotherapy. There are other testimonials regarding recovery from bipolar. It is however very hard to recover from brain-damage due to the medications. ~much love, Grace